Before joining the platform please watch our video guide for a better experience. You can switch the subtitles to your language for convinience.
Joining the conference
How can I join the conference?
Our event will be held online on Vii Events online platform so everyone from any country can join the Congress. If you have registered for the conference, we will share the link to the event in your email. Use a laptop or a PC for the best experience.
How can I join the platform?
  1. Search for an email from DEBRA with the Subject "Welcome to DEBRA INTERNATIONAL CONGRESS 2021" in your inbox.
  2. Click the GET ACCESS button and go to the website.
  3. Insert an email you used for the registration, click the «Join the Event» button and explore the DEBRA INTERNATIONAL CONGRESS 2021 from the reception.
What if I did not get access to the platform?
Please check the spam folder for an email with the subject "Welcome to DEBRA INTERNATIONAL CONGRESS 2021". If it doesn't help, don't hesitate to get in touch with us via email:
Technical requirements
Platform tools don't work well for me. What can I do?
Please check the minimum computer requirements:

Minimum Hardware Requirements:
-2.4ghz Processor

Supported Browsers:
Chrome - latest versions
Firefox - latest versions
Edge - 2 most recent major versions
Safari - 2 most recent major versions
iOS - 2 most recent major versions, partially supported 
Android - Nougat (7.0), Marshmallow (6.0)

What are the requirements to join workshops and networking?
For our workshops and networking, we use ZOOM. There are two options for using it:
  1. Install ZOOM to your computer and continue directly in an App (recommended option)

Tap to download -
  1. Use ZOOM in the browser. Click “Join from Your Browser” at the bottom of the page on the website. Please allow access to the camera and microphone (click “Allow” in the upper corner when the browser asks for permissions). Then put your name and click “Join”.
Navigating the platform
How can I start exploring the Congress?
Just click on the «START HERE» button at the reception and enjoy the features!
How can I navigate the platform?
You can click and point to the different areas of the event on the home page using the 3D/2D view of the platform. You can also use the navigation menu on the left.
How to use 3D mode?
In a 3D mode, you can navigate from place to place using navigation arrows, and you can spin 360 degrees by dragging the screen image.
Where can I find the schedule of the sessions?
Read our Agenda in the upper left corner. It will be the third on your list. Here you will find a schedule of sessions on medical and patient tracks, workshops, and networking. To join the session, click on it in the Agenda. The shown program is under your time zone. 

The schedule is also available on the website. Moreover, you can download it here.
Where can I listen to the sessions?
Attend patient & medical stages in the menu. Please approve, when the browser asks for permissions. You can find the schedule in the agenda. We translate the majority of the sessions. If possible, choose yours in the player at the stage.

You can also watch sessions on-demand if you missed one. Open Agenda, click the "watch on demand" button, select your language, and enjoy Youtube sessions.
How can I join the workshops and sessions?
Click on session in the Agenda menu to join it. The sessions use your microphone and camera. Please allow access to a camera and microphone by clicking the “allow” button. We use ZOOM for workshops and networking. There are two ways for using it:
  1. Install ZOOM to your computer and continue directly in an App (recommended option). Tap to download -
  2. Use ZOOM in the browser. Click “Join from Your Browser” at the bottom of the page on the website. Please allow access to the camera and microphone (click “Allow” in the upper corner when the browser asks for permissions). Then put your name and click “Join”.
How can I explore sponsor booths?
Use the menu in the upper left corner or find it in the ATRIUM space that you can reach from the Red Square. You are welcome to visit our sponsors` area, check out our sponsors` materials, and schedule meetings with them. There you can see the organizations supporting the Congress and explore their materials. To leave the stand, press the “BACK” button.
What are the networking opportunities at the conference?
1. Chat. There’s a public chat for networking at the Red Square (Main page). Here you can interact with all users that are online and using the chat right now. 
2. Attendees space in the menu. You can request a meeting with participants. Also, the platform itself selects for you possible matches.
What is a photo booth?
It's a special place to take a memorable photo from the conference. Follow the link, click "START", and take a picture. Please allow permission when the browser asks for access. Don't forget to post the pictures on your social media and tag Debra accounts on:
You can make a photo, boomerang, and GIF. Explore the options below!
Where can I find info about different countries and organizations?
Explore our Red Square Booths either directly on the Red Square by clicking on the banners or in the menu. There are lots of useful materials and videos about the organization's activities here. To leave the stand, press the “BACK” button.
Still need help?
We got you. Our team is always here to help - just send us an email to or use the tech support chat in the lower right corner of the screen. Our support superheroes will do their best to help!
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Contact Us
© 2021 Debra Russia 2021 | All Rights Reserved
Privacy Policy
This Privacy Policy (“Policy”) describes the order of processing and protection of personal data provided by Subjects to the Charitable Foundation “BELA. Butterfly Children”, a non-commercial organization established and operating under the legislation of the Russian Federation at: Russia, Moscow 105062, Furmanny pereulok, 3 (the “Foundation”) on the website at (“Website”) in connection with preparation of and holding the online sections of the International DEBRA Congress in 2021 (the “Congress”).

This Policy was developed in compliance with the Russian Federal Law 152-FZ of 27 July 2006 On Personal Data (and in accordance with the requirements of clause 2 of paragraph 1 of Article 18.1 thereof) and the EU regulation.

The following information can be collected with respect to different categories of Subjects in connection with the Congress via the Website:

Participants of the Congress (individual Participants or representatives of legal entities): personal data (full name, gender (optional), age (optional), country and city of residence, company name and position (for representatives), medical status (optional choice between ‘patient’, ‘doctor’, ‘researcher’ or other), photo (optional)), contact information (telephone number, e-mail address, link to social network profile (optional));

Sponsors of the Congress (individuals attending via sponsors): personal data (full name, gender (optional), age (optional), country and city of residence, company name and position (optional), photo (optional)), contact information (telephone number, e-mail address, link to social network profile (optional));
Visitors of the Congress Website leaving information via newsletter mailing form and/or the ‘submit thesis/abstract’ form: full name, e-mail address, link to social network profile (optional), country and city of residence (optional), company name and position (optional), telephone number (optional).

All the information collected with respect to Subjects via the Website is provided by Subjects individually or via legal representatives via registration and other forms on the Website on a voluntary basis. Foundation is not collecting any personal data on Subjects from sources other than the Subjects themselves, with the only two exceptions specified below.

Foundation may also receive data automatically collected by the Website when visited by users, including, among other, cookie files, and other data collected by Yandex.Metrics, Google Analytics and Google Tag manager. Foundation does not store or process this data received automatically.

Foundation has access to part of Subjects’ payment information provided by the ticket and payment platform, namely, full name, total amount, type of ticket(s), last four digits of payer’s card number. This information is used for the purpose of confirming payment for participation and matching participant’s data for registration and access to Congress events. Foundation does not store or further process this data.
Foundation is not collecting any sensitive data (special categories of data or biometric data) via the Website. Any photos provided voluntarily by Subjects in the process of registration for the Congress or participation therein shall be in quality not allowing identification based on biometric data.

When voluntarily providing the above personal data via the Website forms, the Subject grants his/her consent for processing of personal data he/she specifies in the form by clicking on the submission confirmation or ticking specific consent box. The consent thus provided by the Subject shall be given freely, intentionally and in Subject’s interest, and this consent will be specific, informed and conscious, considering this Policy is made available on the Website.

The above personal data is collected by the Foundation for the purposes of preparation for and holding the Congress, as follows:

Information on Participants and Sponsors is collected and processed by the Foundation for the purposes of registration for the Congress, distribution of online access information, distribution of relevant information in newsletters before, during and after the Congress, distribution of Congress materials by the Foundation. Information on the gender and age of Participants and Sponsors is collected to create statistics data that contains no personal information.

Information on other Visitors is collected for distribution of relevant information in newsletters before, during and after the Congress and to account for submitted suggestions/thesis/abstracts during Congress discussions and presentations and for potential use of provided thesis/abstracts on posters and in oral presentations during the Congress and/or in publications after the Congress.

The personal data collected hereunder is collected and stored in Foundation’s CRM, used in registrations for Congress events, distribution of access information, distribution of newsletters and Congress materials. Foundation can use received information for preparation of depersonalized statistics data for its own use, or for provision to Congress sponsors and grant operators, as specified below. Personal data can be processed automatically in the Foundation CRM.

Personal data collected by the Foundation on the Website can be provided by the Foundation to following third parties:

Contractors engaged for organization of the Congress (namely, event platform for registration of participants) can receive personal information and contact information of Participants and Sponsors;
Sponsors of the Congress can receive non-personal statistics data (number of registered participants, number of attendees, number of attendees via sponsors, etc.) based on the personal information collected by the Foundation, as part of performance of Foundation’s obligations under relevant sponsorship contracts;
Grant operator can receive data as part of Foundation’s reporting obligations under the terms of relevant grant provision;

Entities performing publication of Congress abstracts and information, in case abstracts provided by relevant Subject were selected for publication.

When providing the above information to third parties, the Foundation is acting upon its legitimate interests. Subjects’ consent is also deemed obtained for the above transfer of their data to the extent, allowed by the applicable legislation, when submitting personal information via the forms on the Website.
Third parties receiving personal information shall ensure its processing within the limits of the purposes specified hereunder, shall employ sufficient safety and protection measures, shall assist Foundation in processing Subjects’ lawful requests and delete such information upon completion of processing purposes.

Foundation is not transferring any personal data obtained or processed hereunder outside of Russia, and, thus, performs no transborder transfer of personal data. In case any transborder transfer of personal data becomes necessary, Foundation shall obtain relevant Subject’s consent for such transfer.

Foundation is processing personal information collected hereunder under the relevant consents expressly provided by Subjects, as well as for performance of Foundation’s contractual obligations to participants and sponsors of the Congress, and on the grounds of Foundation’s legitimate interests as a charity organization dedicated to research and support of patients suffering from epidermolysis bullosa (EP).

Legal grounds for processing of personal information hereunder are a combination of legal acts, in performance of which and in accordance with which the Foundation is processing personal data, including Civil Code of Russia, Russian Law on Personal Data, and other leg al acts regulating relationships between the Foundation and the Subjects and the Company’s activities.

In addition to the above, the agreements entered into between the Foundation and some of the Subjects and the consents obtained by the Foundation from the Subjects for processing of their personal information, all serve as legal grounds for processing of personal data by the Foundation.

Foundation is employing all necessary security measures and systems, including technical, legal and organizational measures required by applicable law and industry practice to ensure confidentiality and safety of personal data collected hereunder and to protect Subjects’ personal data against unlawful or accidental access, destruction, modification, blocking, distribution, or any other unlawful actions. Unauthorized persons are not allowed access to personal information stored and processed by the Foundation.
All personal data collected by the Foundation hereunder is stored and otherwise processed with the use of databases located in the territory of the Russian Federation.

Foundation holds personal information only for as long as is necessary for the purposes for which the personal data was collected and processed, unless a longer period is required by applicable laws. All personal data collected for the sole purposes of preparing for and holding the Congress will be processed until 31 October 2021 and deleted completely upon the expiration of this term.

The term of processing of personal data collected for the purposes of distribution of Foundation newsletter after the Congress is not limited. Subjects receiving Foundation newsletter can opt out of mailing at any time by following the link included in the Foundation newsletters and unsubscribing. In this case the Subject’s consent to receiving newsletter shall be considered revoked, and the data provided by the Subject shall be deleted.

Subjects are entitled to exercise all of their rights and powers under the applicable legislation, including rights under Article 14 of the Russian Law on Personal Data, namely, rights to request information on the scope of processing of their personal data, and to request deletion, modification or update of their data, as well as to withdraw their consent for processing of personal data. All requests related to personal data processing can be addressed to Foundation’s e-mail address at: To allow processing within the shortest period of time, all notifications on withdrawal of consent should specify “Withdrawal of consent for processing of personal data” in the subject line of the e-mail.
Foundation is entitled to amend this Policy at any time without any liability or notification obligations to Subjects. New version of this Policy shall be considered effective from the date of its publication on this Website, unless otherwise specified therein.
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